Living with lymphedema hasn't been easy, but I have learned to accept this "rare" disease. I was born with primary lymphedema, however; I was misdiagnosed for many years. This led to lack of proper treatment, education and most of all lack of quality of life. At the age of 21 I was diagnosed with secondary lymphedema due to a lymphadenectomy in order to remove a melanoma tumor in my right leg. My entire life has been a fight since birth and will continue to fight. I often asked why me? Soon after, the answer was clear. I had to help others win their battle against lymphedema. My passion and dedication sparks through my advocacy. I'm very thankful for my disease. Everyone has a story. Take time to listen and spread awareness.
Our Vision:is a world that recognizes and understands lymphatic disease.
Our Mission:Ninjas Fighting Lymphedema Foundation (NFLF) is recognized non profit organization founded in 2017 to fight lymphatic diseases through advocacy, education and community connections.
Our Goals: Connecting patients with other patients, physicians, therapist and other medical professionals. NFLF is committed to improving the quality of life for patients by assisting with out of pocket expenses. Staying compliant is difficult when the average yearly out of pocket cost is $20,000.
A Special Thanks
One person can't change the world, but a community who bring unique contributions to our cause can. Thank you who have given your time, resources and energy so NFLF could expand our vision, reach our goals and fulfill our mission.
NFLF Founder Amy Rivera with Catherine Rosenberg and Amy Santiago at National Lymphedema Network Conference October 2017
Ninjas Fighting Lymphedema share knowledge, compassion, and truth about Lymphedema and Lymphatic Diseases. There are healthy ways to live with LE and Lipedema and Amy is a living example of that!
ninjas fighting lymphedema shows great support for the LE community. This foundation is absolutely amazing..
NFLF is more than just a foundation, they are the future of Lymphedema